山梨大学看護学会誌　第6巻1号　007-014(2007)

＜原　著＞
脊髄小脳変性症療養者の主観的QOL
―性別, 年齢別, 罹患期間別の比較―

押領司　民，佐藤みつ子

要　旨
　脊髄小脳変性症（SCD）療養者の主観的QOLに関し，性別，年齢別，罹患期間別の傾向を明らかにすることを目的として，在宅療養者205名を対象に神経難病患者の主観的QOL評価尺度を用いて調査を行った。その結果，性別の比較では下位尺度の【感情の変化】と【対人関係】に有意差が認められ，両者とも男性の方が低得点であった。年齢別の比較では，下位尺度の【感情の変化】において低年齢群と高年齢群間で有意差が認められた。さらに、下位項目の「最近何かに感動した」において低年齢群と中間群間で，「これから先に楽しいことが起こると思う」においては低年齢群と高年齢群間で有意差が認められた。罹患期間別の比較では，下位尺度の【疾病や障害】において，短期間群と長期間群間で有意差が認められた。SCD療養者の主観的QOLに関しては，特に，男性，低年齢，罹患期間が短い療養者の得点が低く，よりサポートが必要であることが示唆された。

キーワード　神経難病, 脊髄小脳変性症, 主観的QOL, 性別, 年齢別



Subjective QOL of Spinocerebellar Degeneration Patients ? A Gender￣, Age￣, and Affected
Period￣ Specific Comparison

ORYOJI Tami , SATO Mitsuko

　We report on the results of a survey of 205 home-care patients of spinocerebellar degeneration, using the "subjective QOL Grading Scale of Patients with Neurological Diseases." The purpose of the study was to demonstrate the characteristics if the patients' subjective QOL according to their gender, age and affected period. The results indicate a significant difference between gender according to the categories of "change of feelings" and "personal relationships," with men scoring lower in both. There was a significance difference in the category of "change of feelings" between low-age and high-age groups, as well as between low-age and intermediate-age groups with regards to the category "impressed by something recently," and between lowage and high-age groups about "expecting something to happen." By comparing the groups of different affected periods, a sizable difference was detected between the groups of short and long durations in the category of "illnesses and disabilities." Regarding the subjective QOL of the patients undergoing SCD treatment, men in particular in the low-age group and the short affected period group had lower scores, suggesting that they require additional support.

Key Words　Neurological Intractable Disease, Spinocerebellar Degeneration, Subjective QOL, Gender-Specific, Age-Specific


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